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What is the Lifespan of ALS?

Published in ALS Lifespan 2 mins read

The average survival time for individuals diagnosed with Amyotrophic Lateral Sclerosis (ALS) is approximately three years from the onset of symptoms. However, it is important to note that the lifespan and progression of ALS can vary significantly among individuals.

Understanding ALS Lifespan and Progression

Amyotrophic Lateral Sclerosis (ALS), often known as Lou Gehrig's disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. This leads to the loss of muscle control, impacting a person's ability to speak, eat, move, and breathe over time.

While the "average" lifespan is a useful metric, it doesn't tell the whole story for every person living with ALS. Many factors can influence how the disease progresses, including the age of onset, the specific type of ALS, and the rate at which symptoms advance.

Variations in Survival Rates

Despite the average, a significant portion of individuals with ALS live well beyond three years. The provided data indicates a notable spread in survival times:

  • Approximately 20% of people with ALS live five years or more after diagnosis.
  • Around 10% of those diagnosed survive for 10 years.
  • A small but significant 5% live for 20 years or longer.

This variability underscores that ALS progression is not uniform. The disease course is highly individual, and some individuals experience a much slower progression than others.

ALS Survival Statistics

Survival Period Percentage of Individuals
Average 3 years
5 years ~20%
10 years ~10%
20+ years ~5%

Non-Linear Progression

It is also crucial to understand that the progression of ALS isn't always a steady, continuous decline. Many individuals experience periods, sometimes lasting weeks to months, where there is very little or no noticeable loss of function. This non-linear progression can make the disease course unpredictable and highlights the individual nature of ALS.

For more detailed information on the stages and progression of ALS, you can visit The ALS Association's official website.