Jim Kelly's son, Hunter Kelly, was diagnosed with Krabbe Leukodystrophy, an inherited fatal nervous system disease.
Understanding Krabbe Leukodystrophy
Krabbe Leukodystrophy is a rare, severe, and often fatal neurological condition. It is an inherited disorder that damages the protective myelin sheath of nerve cells in the brain and throughout the body. This damage progressively impairs the nervous system, leading to a decline in motor skills, vision, hearing, and other vital functions. Given its progressive nature, it significantly impacts the quality of life and lifespan of those affected.
Hunter Kelly's Diagnosis and Impact
Hunter Kelly, son of Pro Football Hall of Fame Member and former Buffalo Bills Quarterback Jim Kelly and his wife Jill, was born on February 14, 1997. Shortly after his birth, he was diagnosed with Krabbe Leukodystrophy. Hunter's brave eight-year battle with the disease captivated many and brought significant attention to this rare condition before he passed away on August 5, 2005.
Here's a brief overview of Hunter Kelly's journey:
| Aspect | Detail |
|---|---|
| Name | Hunter James Kelly |
| Diagnosis | Krabbe Leukodystrophy |
| Birth Date | February 14, 1997 |
| Death Date | August 5, 2005 |
| Parents | Jim and Jill Kelly |
The Legacy of Hunter Kelly: Hunter's Hope
In response to Hunter's diagnosis and the lack of awareness and research surrounding Krabbe Leukodystrophy, Jim and Jill Kelly established the Hunter's Hope Foundation in 1997. This foundation was created with a mission to fund research efforts, increase public awareness, and provide support to families affected by Krabbe Leukodystrophy and other leukodystrophies. Through their tireless advocacy, the Kelly family has played a pivotal role in promoting newborn screening for Krabbe and similar diseases, aiming to allow for earlier diagnosis and potential interventions. For more information on their work, you can visit the Hunter's Hope Foundation website.
