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Can people with locked-in syndrome feel?

Published in Locked-in Syndrome Sensation 2 mins read

Yes, many people with locked-in syndrome can still feel. While they are almost completely paralyzed and unable to speak, their sensory pathways, including those for touch and pain, often remain intact.

Understanding Sensation in Locked-In Syndrome

Locked-in syndrome (LIS) is a rare neurological condition characterized by complete paralysis of nearly all voluntary muscles in the body, except for the vertical eye movements or blinking. Despite this profound physical incapacitation, individuals with locked-in syndrome are fully conscious and possess normal cognitive abilities. Their senses, including hearing, smell, taste, and touch, typically remain unaffected.

Key aspects regarding sensation include:

  • Pain Perception: Some individuals with locked-in syndrome can distinctly feel pain. This is particularly true in cases of incomplete locked-in syndrome, where some motor function might be preserved, or the damage is not as extensive.
  • Variability in Sensation: The experience of pain and other sensations can vary significantly among individuals. For some, pain sensations might be limited, reduced, or even entirely absent, depending on the specific areas of brainstem damage that caused the syndrome.
  • Assessment of Sensation: Neurologists can perform specific tests to determine an individual's ability to feel various sensations, including pain, helping to understand their unique sensory experience and guide care.

This means that while the body cannot respond or move, the brain continues to receive sensory input from the environment, including external stimuli that can cause discomfort or pain. This highlights the critical importance of careful medical attention and supportive care for individuals living with locked-in syndrome.

For more information on locked-in syndrome, you can refer to reputable medical sources such as the National Institute of Neurological Disorders and Stroke.