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What is HESA disease?

Published in Medical Organization 2 mins read

The question "What is HESA disease?" is not accurately phrased. HESA is not a disease, but rather a non-profit organization. HESA stands for Hashimoto's Encephalopathy Support Association. HESA focuses on supporting individuals affected by autoimmune encephalitis, with a primary focus on Hashimoto's Encephalopathy/SREAT (HE/SREAT) and Seronegative Autoimmune Encephalitis (SAE).

Therefore, there is no "HESA disease" as such, it's more accurate to ask about the conditions that HESA supports:

Understanding HESA's Focus

HESA is a 501(c)3 not-for-profit organization dedicated to supporting individuals affected by autoimmune encephalitis, with an emphasis on:

  • Hashimoto's Encephalopathy/SREAT (HE/SREAT): This is a rare neurological condition associated with Hashimoto's thyroiditis, an autoimmune disorder affecting the thyroid gland.
  • Seronegative Autoimmune Encephalitis (SAE): This refers to autoimmune encephalitis where no specific antibody causing the condition has been identified.

Key Aspects of HESA's Focus

Here's a table summarizing the main conditions of HESA's focus:

Condition Description Antibody Identification
Hashimoto's Encephalopathy/SREAT (HE/SREAT) A rare neurological condition linked to Hashimoto's thyroiditis. Potentially related to thyroid antibodies
Seronegative Autoimmune Encephalitis (SAE) Autoimmune encephalitis where no specific antibody has been identified as the cause. None identified

What is Autoimmune Encephalitis?

  • Autoimmune encephalitis is a condition in which the body's immune system mistakenly attacks the brain, causing inflammation.
  • Symptoms can vary widely and may include cognitive impairment, seizures, psychiatric disturbances, and movement disorders.

HESA's Support Role

HESA plays a crucial role in:

  • Raising awareness about these rare and often misunderstood conditions.
  • Providing support to patients and their families affected by HE/SREAT and SAE.
  • Promoting research to better understand and treat these conditions.

Key Takeaways

  • HESA is a non-profit organization, not a disease.
  • HESA supports individuals affected by autoimmune encephalitis, primarily HE/SREAT and SAE.
  • HE/SREAT is associated with Hashimoto's thyroiditis.
  • SAE is autoimmune encephalitis with no known antibody cause.
  • HESA aims to provide support, raise awareness and promote research into these neurological conditions.