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What do Scleroderma Hands Look Like?

Published in Scleroderma Symptoms 3 mins read

Scleroderma hands undergo distinct and progressive changes, initially appearing swollen before the skin becomes hard, shiny, and tight, potentially leading to significant functional limitations.

The appearance of hands affected by scleroderma evolves through different stages as the disease progresses, primarily due to the excessive production and accumulation of collagen in the connective tissues.

Stages of Hand Changes in Scleroderma

The transformation of scleroderma hands can be understood in two main phases:

  • Early Stages:
    • Swelling: Initially, individuals may notice a puffiness or swelling of the fingers, making them appear thicker than usual. This early swelling can sometimes be accompanied by stiffness and discomfort.
    • Raynaud's Phenomenon: Often, one of the first signs affecting the hands is Raynaud's phenomenon, where fingers turn white, then blue, and finally red in response to cold temperatures or stress, due to constricted blood vessels.
  • Later Stages (Fibrotic Changes):
    • Skin Hardening and Tightening: As the disease advances, the connective tissue thickens and becomes fibrotic (scar-like). This causes the skin on the fingers and toes to become progressively hard and tight, making it difficult to pinch or pull away from the underlying tissue.
    • Shiny Appearance: The extreme tightness of the skin often gives it a smooth, shiny appearance, particularly over the knuckles and joints.
    • Difficulty Bending: Due to the severe tightening and hardening of the skin, the fingers become increasingly difficult to bend and straighten. This can significantly impair hand dexterity and fine motor skills.
    • Contractures: In severe cases, the persistent tightening of the skin can lead to the formation of contractures. This means the fingers become permanently bent or curled, as the skin and underlying tissues shorten and restrict movement, making it challenging or impossible to fully extend the fingers.

Key Visual Characteristics of Scleroderma Hands

Understanding the specific visual characteristics can help identify the progression of the condition:

Feature Early Scleroderma Hands Later Scleroderma Hands
Appearance Puffy, swollen fingers Hard, tight, shiny skin, possibly with visible joint changes
Texture Soft (initially) Firm, inflexible, leathery
Mobility Normal or slightly stiff Restricted movement, difficult to bend, potential contractures
Common Symptoms Swelling, stiffness, coldness, color changes (Raynaud's) Pain, numbness, limited grip, skin ulcers

Impact on Daily Life

The changes in scleroderma hands can significantly affect a person's ability to perform everyday tasks. Simple actions like buttoning clothes, picking up small objects, gripping items, or even fully opening the hand can become challenging or impossible. Management often involves therapies aimed at maintaining mobility and managing symptoms to improve quality of life.

For more detailed information on scleroderma and its effects, you can learn more about scleroderma.