"Butterfly skin" is a common nickname for epidermolysis bullosa (EB), a group of rare inherited skin disorders. People with EB have very fragile skin that easily blisters and tears, even from minor injuries like rubbing or scratching. The condition gets its name from the delicate, butterfly-like wings that are similarly fragile and prone to damage.
EB is caused by genetic mutations that affect the proteins responsible for attaching the skin layers together. This results in weakened skin that can separate easily. There are different types of EB, with varying degrees of severity. Some forms may only cause mild blistering, while others can be life-threatening.
Children with EB are often called "butterfly children" because their skin is as delicate as a butterfly's wing. This term reflects the severity of the condition and the challenges faced by individuals living with EB.
Here are some key characteristics of butterfly skin:
- Fragile skin: Easily blisters and tears, even from minor friction or pressure.
- Painful: Blisters and wounds can be extremely painful, leading to discomfort and difficulty with daily activities.
- Increased risk of infections: Broken skin is susceptible to bacterial and fungal infections.
- Scarring: Repeated blistering and healing can lead to scarring, which can affect the skin's appearance and functionality.
While there is no cure for EB, treatments focus on managing symptoms, preventing infections, and improving quality of life.